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In
This Issue
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Interview: Dr. Lucy Jane Miller *
Accessing School Federal Stimulus Funds: A Success Story! *
Updated iLs 2010 Training Schedule *
iLs Announcement: New iLs Playbook - more visual tracking, new
layout *
Interesting Research in the Field
iLs
Interview:
Dr. Lucy Jane Miller, OTR/L, Ph.D., Director of SPD Foundation,
Founder of The STAR Center and author of "Sensational
Kids."
What
kind of clients does STAR see? We see a broad variety
of clients, from 5 months up to age 35. Almost all of the
people that come to us have some kind of Sensory Processing
Disorder. I’m not a fan of using labels to describe
people, but to give you an idea of who we see, most of them come
with diagnoses of autism, ADHD, anxiety disorder, learning
difficulties. As a group, the types of problems that our
clients bring seems to be shifting over time.… When
I started as an OT back in 1980 kids were more learning disabled,
but now we’re starting to see a lot of children with
various kinds of emotional challenges as well. There are
also so many children with multiple diagnoses. These are
complex issues, not as easy to resolve as the more “pure”
Sensory Processing Disorder that we used to see.
What
interventions do you use at STAR? First of all we
want parents to be very engaged in the program, and by engaging
parents in an intensive intervention model (3 to 5 times a week)
we get a commitment from them to make other activity sacrifices
for about 30 sessions or 2 ½ to 3 months if they live
in-town, or 3 weeks to 1 ½ months if they are from
out of town. So, for example, instead of going to soccer,
piano or gymnastics, they put all that time and energy into
working with their child for that time period and when done they
return to natural settings and activities in the community.
We have a broad menu of interventions, with the objectives based
on the family’s priorities. After the evaluation and
feedback we take a whole session to work with the parents (no
children at this meeting) to help the parent establish measurable
goals for their child’s program. That way we can
evaluate if the treatment is working for that child.
The
interventions we use include OT, iLs and DIR Floortime, and other
sensorimotor stimulation techniques such as Interactive
Metronome, Wii and Makoto. The main thing is that we focus
first on relationship and engagement. Many of the kids
coming to us seem unable to make the kinds of interpersonal
connections needed to develop normally. So we need to take
a step back from any specific intervention and establish a
special relationship with the child and with his/her parents.
Sometimes this takes several sessions.
In terms of
labeled intervention approaches we combine in different amounts
as indicated by the child’s needs: occupational therapy
with a sensory integration approach, DIR/Floortime, iLs and a
host of other methods. The way in which we combine these
different interventions is based on clinical reasoning, which is
the process of determining in the moment what will challenge the
child while still providing enough support that he/she will be
successful.
You know, Dr. Ayers always saw children
intensively, but because of managed care, insurance scheduling,
etc, the 1x a week model developed. In my opinion, once a
week therapy can be used to work on changing some environments,
task requirements and perhaps behaviors but it’s not enough
to actually change the brain.
What does iLs
bring to the table in terms of results at STAR? We
have seen tremendous developmental growth spurts using iLs in
combination with OT. We use it with most of our children.
iLs combined with OT seems to accelerate or “jump start”
many of the children’s developmental changes. It also
can have a calming effect on some children which makes it easier
for our therapists to work with the child. In general, we
see accelerated gains by adding iLs to OT.
Can
you tell me about a recent client who is a good example of the
changes you see in your practice combining OT with iLs?
2 weeks ago we had a little 4-year old boy who came in for
just 1 week of therapy. We asked him to draw a picture of
himself during his pre-test when he came in. He drew a long
arm-type shape on one side of the paper and then he turned the
paper over and on the other side he drew the other arm-type
shape. He was carefully treated with extensive discussion
of his needs by the whole team. His intervention was OT and
iLs with suggestions for home, for 5 days in a row. On the
fifth day before he left he was again asked to draw a picture of
himself. He drew a recognizable figure of a head, eyes,
smile, a sort of vague body, and yes (of course!) arms.
That was after only 5 sessions. We also saw behavioral and
other gains but the difference in the pictures impressed us all .
. . and his mother had tears in her eyes when we showed her
the gains her child had made.
What kinds of
training options are you offering through the Sensory Processing
Disorder Foundation? Right now we have 3 major
programs: national conferences, e-learning campus and intensive
mentorships for professionals, Level 1 and Level 2.
In
Level 1 Mentorship, a small group of 8-10 therapists come
together to learn to really understand Sensory Processing
Disorder and all its subtypes. We look in depth at each
subtype of SPD--one subtype per day, e.g., on day one, we focus
only on modulation disorders; on day two we focus only on
postural disorders, and so on for dyspraxia and discrimination.
And we talk about treatment options for each of the subtypes.
The mentees leave with a much more in depth understanding of what
SPD is and is not, and how to differentiate the subtypes.
In
Mentorship Level 2, each trainee works individually with a client
for the week. The mentees get one-on-one supervision from
the STAR OT who is present for their entire session, and we video
tape each mentee for each session on each day. Then in the
afternoon, Dr. Sarah Schoen and I review the tapes with the
mentees and provide training on relationship building, clinical
reasoning, integrating cognitive behavioral approaches into OT,
when to use iLs and more.
We have an e-Learning
Campus on the internet also. We have several new
e-learning modules about to launch and expect to continue
launching new segments about two or three per semester.
You had a Sensory Processing Disorder Foundation
conference last week and just before that, the word was released
that SPD made the DSM short list. You’ve devoted a
big part of your life to this effort – how’s it
going?! It really does feel like a big victory
for us. After 35 years… you can imagine. Sensory
Processing Disorder is 1 of only 12 diagnoses that were submitted
by “outside sources” [that’s what they call
us!], that made the short list for possible inclusion in the
DSM-V. The DSM-V committee is taking comments from the public
until April 20th. We really need people who have worked
with children who have SPD or who have children with SPD to write
a short letter and post it on the DSM-V website. For more
information about how to write the letter and where to submit it,
please visit us at www.spdfoundation.net/dsmv.html
In
2011 the committee will make the final decisions and the DSM-V
book will be published in 2013. We will submit to the DSM
committee whatever research gets completed by all the scientists
on our scientific work group by the end of this year. . . and
then, that’s it!
Accessing
Fed Stimulus Funds: A Success Story An interview with Jackie
Taylor, OT in Adams 12 School District, Colorado
How
were you successful in receiving federal stimulus grant
money? The district applied for a number of things
with the state which is applying for federal stimulus funds (ARRA
Funds). I applied in Dec using a simple form plus the support
materials – explanation of iLs from web site, research
results, and a CD with interviews of teachers (the pilot study,
research, and CD with interviews are on the iLs web site). We
also applied for PT, OT and other equipment. Everything came
through in March, including funds for 15 iLs Total Focus systems.
How do you implement iLs w/o losing class time? We
talked to the lawyer for our district to get his approval for
using iLs during school hours. He said it’s been
demonstrated to be effective with students so we can use it
during the day.
We use it with kids with IEPs so they are pulled out of class
anyway. The special ed teacher, or aid, typically does iLs
sessions. Formally, we have to do it with children who have LD or
autism because that’s what the grant was for. But we can
use iLs informally after school with any kids (with parent
permission).
Who monitors the iLs sessions? Each school
is different. Aids are often doing the program with the Special
Ed teacher in the room at the same time. In other schools parents
and para-professionals are helping monitor the program.
May we post your application for others to see? Of
course! (Note: Ms. Taylor’s ARRA application is now posted
in Forms & Documents in the Professional Resources section of
the iLs web site)
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Lean
more and register for a training session at
www.integratedlistening.com/training
iLs
announces the new Playbook & Integration Kit:

Playbook and equipment
additions - hanging ball, bouncing ball and Playbook - are
available to iLs Associates at our cost: $30, including
shipping. To have video demos loaded on your iPod add
another $10.
Interesting
Research in the Field
Ringing
in the old ear - Whooshing, whirring, roaring,
whistling… all descriptions of “ringing in the
ears”… provide millions of people with a
not-so-welcome soundtrack for their lives... University of
Florida, Health Science Center News
Will
iodine fortification solve Australia's iodine deficiency dilemma?
- A recent study called the Australian Total Diet Study showed 70
per cent of women aged 19 to 49, covering most of their
childbearing years, were not getting enough iodine from their
diet. www.blackmores.com.au
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